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9th Annual Patients as Partners® Europe Event to Focus on Advancing Patient Involvement in Clinical Research

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NEW YORK, NY, United States, 11-Feb-2025 — /EuropaWire/ — The Conference Forum has announced the 9th annual Patients as Partners® Europe event, set for May 20-21, 2025, at the Royal National Hotel in London. This event provides a unique platform for pharma R&D professionals and patient advocates to discuss how patient involvement can reduce risks and inefficiencies in clinical research while advancing the development of new treatments.

Alfred Samuels, a patient advocate and co-chair for 2025, emphasized the importance of recognizing patients as experts in their conditions, which leads to more successful trials and better healthcare outcomes.

Keynote speakers include:

  • Harry Verbunt, who will share his post-cancer clinical trial experience and suggestions for improving trial access.
  • Peter DiBiaso, discussing the importance of placing patients at the center of research.
  • Dr. Temi Olonisakin, offering patient perspectives on support in clinical research.
  • Lea-Isabelle Proulx, PhD (Roche), on reducing patient burden through improved protocols.
  • Beyza Klein (Johnson & Johnson), on embedding a patient engagement strategy.
  • Dr. Catherine Coulouvrat (Sanofi), discussing how patient experience data informs product tolerability.
  • Marisa Minetti (Chiesi Farmaceutici), on leveraging patient archetypes in protocol development.
  • Gisela Linthorst (Azafaros), on involving the patient community in early clinical trials.

Pharma companies such as AstraZeneca, Boehringer-Ingelheim, GSK, and others will also present case studies on advancing patient partnerships.

The event will explore critical topics including patient-informed research, decentralized trials, increasing trial representation, and reducing patient burden through technology.

Patients as Partners® Europe is co-produced with patients, R&D, academia, and non-profit organizations to advance patient involvement and access. For more details, visit PatientsAsPartnersEU.com.

About the Conference Forum: The Conference Forum is a life science industry leader in organizing conferences, webinars, and digital content, driving efficient medicine development and patient access. Learn more at theconferenceforum.org.

SOURCE: EuropaWire

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EU Patients as Partners in Medicines Development conference to be held virtually on Jan 24-25, 2022

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(PRESS RELEASE) New York, NY, United States, 5-Jan-2021 — /EPR HEALTHCARE NEWS/ — The Conference Forum announced the launch of the 6th annual EU Patients as Partners in Medicines Development conference to take place virtually on January 24-25th, 2022 GMT time.

​​This annual event, the first of its kind in Europe, will feature successful collaborations between patients and pharma where patient input directly impacted aspects of how a pharmaceutical company either designed or conducted a clinical trial.

Of the 20 sessions, half include a patient or patient advocate. This two-day program will demonstrate how patient-led research can improve the way pharma conducts clinical trials.

Examples include UCB developing new assessment tools to measure the effectiveness of novel treatments for Parkinson’s disease, changes in the design and implementation of an MS trial for greater patient engagement, and the development of a new toolkit to change the way patients are compensated for their contributions in clinical research.

“Patients have become more empowered,” says co-chair Michaela Dinboeck, Head, Center of Excellence for Patient Engagement at Novartis. “So patient engagement must be integrated into the DNA of how medicines are developed, approved, and used. Patients as Partners Europe will provide Pharma with valuable insights on how to achieve this.”

Participating pharma companies include Novartis, Pfizer, Merck KGaA, EMD Serono, Janssen, Johnson & Johnson, GSK, Ipsen, UCB, Takeda, AbbVie, Noema Pharma, Gilead Sciences, Regeneron, and Pierre Fabre.

Other topics to be addressed include: Scaling patient engagement activities company-wide, engaging patients in early clinical development, leveraging social media to gain patient insights, diversity and inclusion in research and updates on patient engagement activities in Eastern Europe.

To learn more, please visit Patients as Partners Europe.

SOURCE: EuropaWire